It's been a bit of a rough day today. Caleb was supposedly scheduled for an MRI at noon. They took him off food at 6 a.m. & off drinks at 10 a.m. Around 12:45 p.m, we found out that his MRI was scheduled for 2 p.m. When we said, "what happened to his 10 a.m. appointment?" we were told that in the radiology area, that just meant he was MRI "ready" and his actual appointment was at 2 p.m. At 2:15 p.m, we still hadn't been called downstairs. We got another notice that an urgent case had come in and the MRI was being pushed further back. Around 4 p.m., we still hadn't been taken down. Dr. Leger said she'd spoken to someone who told her it would probably be around 7 or 8 p.m. before radiology was ready for us so we could reschedule for tomorrow morning if we wanted. Then Natalie, our nurse, said she had been told that Caleb was on the list for right after the urgent case being done.
That's when Dr. Winick went on the warpath.
I think she decided it was time to kick butt & take names. By the time it was all said and done, we now have a scheduled appointment at 9:00 a.m. tomorrow morning, which supposedly means he will be on the table at 9 a.m. Dr. Winick said that at 9:15 a.m, she will be taking a walk -- not calling on the phone -- but taking a walk. If Caleb is not inside the machine, she will be livid. Then --- LOOK OUT! I'm so glad she's on our side.
We also showed her a problem we were having with dust build-up on the ceiling in our room. I thought she would blow a gasket. Her exact words, "This is unacceptable. I'm calling housekeeping & infection control right now." Since she left our room, she's been contacting housekeeping, engineering, infection control & called a meeting of all the night shift nurses in oncology to tell them, "Look Up!" They want to make sure this issue is not in any of the other rooms. If it had to happen, I'm kinda glad it happened to us since Caleb's counts are all okay. I'd hate to see it cause a problem for a child with a severely compromised immune system.
In other Caleb news, he spent every waking moment he could in the playroom again today. It definitely helped keep his mind off food. We've had so much fun playing Mario Kart that I think we're gonna have to get that game for him at home soon.
He's finally had dinner consisting of chicken nuggets, mac & cheese, 2 applesauce packets, a sugar cookie, grapes, 1/2 a popsicle & some apple juice. He's just fallen asleep and will probably be out for the night with the exception of potty breaks. I'm kinda hoping to get to bed before 10 p.m. tonight as well.
I want to send a thank-you to Bobbie, Annie & Haiden for making this great poster for Caleb:
I posted a song link late last night on my Facebook page that describes how I'm feeling lately. I feel as if I am in the midst of a Category 5 hurricane, yet, I will praise the Lord. My help comes from Him and none other. He's still on the throne & He knows what He's doing. Though my heart is torn, I will praise Him in my storm.
I hope this song speaks to you as much as it has me.
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