Monday, December 27, 2010

Hunger in the Night

Well, it's begun in earnest now. Caleb's up a few times each night with one thought on his mind -- FOOD!  It's hard to balance his eating when all he's craving is junk food. I've finally found some pants that fit him in the waist & length, but don't know how much longer they'll fit if he's eating all the time.

The good news is that the increase in steroids still seems to be working. We decreased the amount to 1 ml twice a day on Christmas Day. So far, all continues to go well.

Caleb went ice skating on the 23rd with Aunt Dar & one of his 2nd cousins. They got his skates on, but he was so unsteady, he decided he didn't want to skate after all.  At the end of their session, after everyone else was off the ice, they managed to coax him on the ice for a couple minutes.  He told Aunt Dar that it was his best day ever, and she provided the best present that wasn't wrapped.

Christmas Eve dinner with the family went well. Caleb slept through the first half of it though. He has been going nonstop since we got here, so he's napping much more often.  He got several new toys. We broke out his new Hungry, Hungry Hippos game for him to play with Uncle Andy & Daddy. Somehow, he managed to choose the one hippo that had a tougher lever to press. He got so frustrated and started screaming because he couldn't press it even with his left hand. Fortunately, we got him calmed down fairly quickly and just switched him to another hippo. It's too bad he couldn't keep using the one he had because its name fits Caleb so well right now --- Bottomless Potamus! We're thinking of changing the name of the game to Hungry, Hungry Caleb.

Christmas morning, we finally opened the last set of gifts. I couldn't believe how many gifts were able to fit into that bag. Thank you, thank you, thank you, to our wonderful Battle4aCure angels. We'll post more pics to Facebook as soon as we can.

Caleb's Uncle Bernie, Aunt Jennifer & cousin Emmanuel arrived last night for a short visit on their way back home. Caleb was so excited to see them & even more so when he found out they would still be here this morning when he woke up.

We're looking forward to a few more days of fun with family before heading back. We're considering heading back early because Caleb is getting really homesick for his cat. He wants to hold his Candy Cane.


  1. It sounds as if you ALL had a nice Christmas!! I'm so glad you were able to be with family and that Caleb was able to enjoy being a little boy at Christmas! It's such a special time of the year, and I can't think of more special family than yours!

    Lots of Love & Prayers,


  2. Just getting caught up on the blog. We missed you all, but glad you're enjoying the vaca. Looking forward to the good report from the MRI. Have a good trip home. ~Ken