We had our clinic appointment on Thursday, December 16th. The doctor was stunned at the decline Caleb's had since Thanksgiving. They still believe it is a result of the swelling caused by the radiation. So, they've increased his steroid medication from .5 ml twice a day to 1 ml three times a day for a week then to 1 ml two times daily.
We were concerned that they wouldn't let us leave for vacation because of his condition. They told us what to keep watch for and sent us off with the new increased medication directions.
I'm not really happy about having to increase the steroids again, because his attitude is the pits already & the steroids make it worse as well as increasing the hunger. However, if it helps decrease the swelling and improves his walk & other symptoms, then I'll gladly give it to him.
It is now Saturday evening, and we can already tell a positive difference in his walk. He's enjoyed the day with his cousins, aunts, uncles & grandparents. He fell asleep about an hour ago and is already looking forward to visiting with family again tomorrow.
Please continue to pray that the swelling continues to go down & we get a good report for the MRI on January 11th. We also need prayers for his physical therapy (PT) appointment on January 4th. I'm not sure how he's going to respond to therapy for a full hour since we only made it through 45 minutes at OT before a meltdown & absolute refusal to continue.
OH! I almost forgot to mention that we were blessed to be adopted by our local Lowe's for Christmas. They came by on Friday morning and presented us with numerous gifts. I'll upload pics as soon as I can get to a compatible computer. Thank you, Lowe's!! The boys love their gifts & we appreciate everything you did for us!