Sunday, November 28, 2010

Great Weekend But Minor Setback

I know I haven't updated for a few days, but this holiday weekend has been kinda busy.  We went to visit Caleb's grandparents for Thanksgiving. He had a blast playing with his cousins (Kenson & Kayleena) from Tulsa who were also visiting. He even got a surprise visit from one of his cousins (Jordyn) from Louisiana who was  in the area for a surprise visit to one of her friends.

After spending several hours playing with Kenson's Nintendo DSi, Caleb is now convinced he is going to enjoy the one he won from school from the fundraiser. It's supposed to be in this week & he's excited about getting it. He's hoping it's also a DSi, but I think it's only a DS.

We drove back Friday night. Saturday was Caden's 2nd birthday & the boys got a surprise visit from their Aunt Darlene from Louisiana who was visiting her friend locally. Later that afternoon his Uncle Andy & Aunt Deanna arrived. They drove over from Louisiana to spend some time with him.  Kinda cool that they all drove over separately from the same area at the same time. I guess they just couldn't wait until Christmas to see him. :o)

Uncle Andy & Aunt Deanna will get a chance tomorrow morning to see exactly what Caleb's radiation treatment is like. They are meeting us at the radiation center tomorrow morning then going to breakfast (IHOP again) before heading off to spend some alone time.  (I actually have some video of Caleb racing the doctor & giving himself the sedation medicine which I hope to upload soon.)

AND....It looks like the end of radiation is finally in sight!  We are scheduled for our last 4 radiation treatments this week. Woohooooooo!!  We are so ready for this to be over.

We did have one minor setback over the weekend. Since we decreased Caleb's dexamethasone (steroid) on Nov. 18th, he's had several headaches and has started showing some sign of weakness on his right side again. We checked with the doctors on Saturday and they increased the steroid back to 0.5 ml twice a day.  Since we added the extra dose back in, he hasn't had a headache. His appetite is picking up again, though, so I'm not looking forward to the "Mommy, I'm hungry. Give me something NOW" phase again.

I'm really hoping that the right-side weakness is just because he's been so active the last few days and hasn't wanted to rest much. He's played so hard and had so much fun visiting that he's a bit worn out, but doesn't want to risk missing anything by resting.

In other news, I've now officially turned in the paperwork for the Make-a-Wish program & Caleb's been invited to his first Christmas party! Apparently, the clinic has a "holiday celebration" for all the patients and immediate family members along with the clinic staff every year. It sounds like a lot of fun & Caleb's already looking forward to going.

Well, it's getting a bit late and 4:30 a.m. is still too early to get up, but we do what we must.


  1. I'm with you, hoping the meds will keep the headaches at bay. Congrats on finishing the paperwork for the Make A Wish program!! Once the radiation is over with, what's the next step? Thanks so much for helping us all to keep up with Caleb's progress. :)

    Lots of Love,


  2. Hey Caleb,

    We were thinking of you today and how proud we are of you for finishing radiation!!! We miss seeing your bright face every morning and can't wait to be able to play together.

    Love you buddy!

    Sydney and Erin